Nina Smith, patient advocate and one of the approximately 25 to 30 million Americans with a rare disease.
NINA Smith is one of the approximately 25 to 30 million Americans with a rare disease. She lives with hereditary angioedema (HAE), which causes painful, unpredictable and potentially life-threatening swelling attacks throughout her body, including her arms, legs, face, abdomen and upper airway. People like Nina often struggle for years to obtain an accurate diagnosis because conditions like HAE are so rare and often thought to be other, more common conditions.